Saturday, 10 May 2014

Right time to start a blog.

So as ME awareness week is approaching... 1 day to go, I have been reading more and more blogposts from people supporting the occasion. For a long time I've avoided talking about being ill, not that people don't know, they do, you can't really hide that fact you spend most of your days in bed. But when I am out of the house, I don't talk to friends about how ill I've been recently, how this is the first time I've seen sunlight this week, maybe I avoid talking about it and tell everyone 'I'm doing fine' because it helps me feel that bit more normal, or maybe its because I already think about it everyday when I'm stuck in the house, so when I do have the opportunity to think about something else for a couple of hours, I take it! I'm sure theres no harm in leaving the 'this is my life now' daunting thoughts at home, theres no doubt that they'll be ready and waiting to jump right back in my head once I walk back into the house. Though part of me does wants to talk to my friends, let them know how I have actually spent my week but who really cares to hear someone complain about their life when to them a life in bed, getting away with not reaching deadlines, sounds like a luxury. I always mumble away my answer to 'what you been up to?', some people say 'nothing really' just because they think they haven't done anything exciting enough to share but when I say 'nothing really' it's because I really haven't done anything, unless laying in bed is classed as something! But yes, I'm going way off the point, I wanted to talk about how I've never really cared to research ME, like I said, the opportunities I have to not think about it are great, so I wouldn't want go out of my way to read about it knowing I'll probably read something I didn't want to, the 'There is no cure for CFS' is usually the line that gets me. Makes me question why I thought googling the letters ME or CFS were a good idea in the first. Though recently I have seen the benefits in acknowledging it and acknowledging the other 'spoonies' (I've learnt thats what they/we are referred to as), out there. I am in a better place now where I am able to view this unfortunate illness in a positive way, yes I may not of found the boat with all the others spoonies on 'till now but I feel ready to board the boat and join in with this weeks events, starting with this blogpost, it's Saturday 10th May, it's 23:21 and I'm here writing this, with my blue ribbon on my top as we speak, I'm hoping to get some sleep tonight and be up tomorrow to bake and eat some cake to join in with lifeintheslowlanewithme's virtual tea party! Should I be this excited to eat cake, drink tea and post photos online while it happens?! I have to find excitement in something now don't I! :)
So heres to this awareness week for bringing something new out in me, a side that I want to share, so I am able to spread the awareness too!
Let's hope for a great week, I keep my fingers crossed for everyones energy levels, hopefully we all manage to spend at least one day on our feet this week!



Right this minute, first blogpost complete!
                                                                         
                                                                 Katie xx

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