Raising awareness for severe M.E. with selfies in black dresses… sounds a great idea! Though I did miss the day… I’m stuck in quite a rough patch at the minute and I wasn’t able to do anything yesterday but I’m sure I can get away with one day late… any day is a good day to raise awareness, right? As I'm a bit late I figured I had to step it up with my photos which may have resulted in them being a little harsh... but it can be a harsh reality.
I read about the black dress selfie campaign
here on
sallyjustme.blogspot.co.uk, the idea was to raise awareness for the people suffering with severe M.E. by posting a selfie in a black dress on your social media. August 8th, this day would mark the 41st birthday of Sophia Mirza. Sophia sadly lost her life to M.E. in November 2005, at the young age of 32. Many others are suffering in the dark with this terrible condition and are often left with an extremely low quality of life.
Read more about Sophia Mirza's story here
I myself have suffered with M.E. for the past 4 years and I still don’t fully understand it, I just have my own experiences to go by. And from that I can tell you what a dark, lonely place your world can turn into, feeling trapped in your own body, opening your eyes to see the same four walls, day in day out and having to squint your eyes at the sunlight showing through the gap in your curtains… But not one of my stories could ever touch on the devastation that severe M.E. brings into peoples lives; being ill 100% of the time,being confined in their bed unable to move or function, having to be tube fed, being so hypersensitive that they're unable to see anybody, having their life taken away from them yet still being misunderstood.
Please take a moment to raise some awareness, whether you share this post, retweet a black dress selfie on twitter, write your own blogpost or post your own selfie (a bit late like me)...
The more people that are aware of this nasty condition, the better!
Know that you're never as alone as you feel.